Network 13 provides services to help ensure transplant and end stage renal disease (ESRD) patients are receiving the best care possible. We do this by:
- Working with dialysis and transplant facilities to improve the quality of care
- Investigating patient grievances
- Providing patient and provider education
- And more!
We encourage you and your family to learn more about ESRD and ways that you can become involved in your treatment by looking at topics on this website. Equally important, we urge you to talk to your care team (physicians, nurses, social workers, dietitians, and technicians) and get involved in the decision-making process so that you will find your own best approach to treatment.
New Resource: Getting Back to Me: A Goal-Setting Journey (PDF)
Do you have a goal you would like to achieve? The Getting Back to Me: A Goal-Setting Journey is a workbook that can assist you with identifying personal goals and setting a plan to achieve them. This resource was developed by kidney patients and family members and designed to help restore a sense of dignity and increase self-esteem through goal-setting.
If you have a concern about the care being provided to you or family member in a dialysis clinic, you may call the Network at any time. However, you are encouraged to speak to the clinic manager, charge nurse, or social worker first. This resource will provide you with more information about the Network grievance process, including how to file a grievance.
Patient Rights & Responsibilities
Do you know your rights as a patient? This poster reviews important patient rights for ESRD patients to know and understand.
This Spanish language poster outlines important patient rights for ESRD patients to know and understand.
Some diseases and conditions put children at risk for kidney disease. A urine test is used to check for kidney disease before symptoms appear. Read more to learn about risk factors, the urine test, and treatment for kidney disease. Also available in Spanish.
ESRD and Health Education
This poster helps to dispel myths about the depression that can accompany a chronic disease such as end stage renal disease (ESRD).
Patients with chronic kidney disease are at increased risk of pneumococcus infection. Read this fact sheet to learn more about the pneumococcal vaccine.
If you and your dialysis care team decide that hemodialysis is the best choice for you, you will need to have a vascular access made. This site will help you take the proper steps to plan your access.
Life Options has free print materials available, including booklets, newsletters, and fact sheets. This site contains vascular access education in multiple languages.
The Social Security Administration wants you to understand what Social Security can mean to you and your family’s financial future. This publication, Understanding The Benefits, explains the basics of the Social Security retirement, disability, and survivors
Kidney failure treatment - hemodialysis, peritoneal dialysis, and kidney transplantation - is costly and most people need financial help. Find out about your options for assistance.
The American Kidney Fund is dedicated to ensuring that every kidney patient has access to health care, and that every person at risk for kidney disease is empowered to prevent it. The site offers patient programs, kidney disease education, and professional education.
The American Society of Pediatric Nephrology is an organization of pediatric nephrologists and affiliated health care professionals. Our primary goals are to promote optimal care for children with kidney disease through advocacy, education and research; and to disseminate advances in clinical practice and scientific investigation.
The August 2020 Patient Newsletter highlights emergency preparedness during the Coronavirus 2019 (COVID-19) pandemic, transplant options, the importance of vaccinations, and a patient story on the importance of a supportive network of healthcare professional, friends, and family.
The June 2020 Patient Newsletter highlights home treatment options, how patients can cope with the Coronavirus 2019 (COVID-19) pandemic, including how to engage in telehealth visits, and how the Dialysis Facility Compare website can be helpful in comparing dialysis facilities.
This guide provides an introduction to the role of a patient subject matter expert (SME).
This guide explains the role of a Network Patient Representative (NPR), including how you can help, what is expected of you, and more.
Advance Care Planning
This brochure will provide details on how to have control over your healthcare in the event that you cannot speak for yourself.
The Coalition for Supportive Care of Kidney Patients brings together like-minded people who care deeply about the quality of compassionate, supportive care for kidney patients. We are professionals from many disciplines and laypersons who are working for true patient-centered care that values quality of life. The website includes education, helpful links, and resources.
The National Institute of Diabetes and Digestive and Kidney Diseases provides information and education regarding ESRD treatment.
The National Institute of Diabetes and Digestive and Kidney Diseases provides information and education regarding ESRD treatment options in Spanish.
Going Back to Work or School
See how your facility compares to others based on star ratings, services offered, and quality of care. Find and compare Medicare-certified dialysis facilities and get information about chronic kidney disease, dialysis and transplants. Talk to your dialysis team about Medicare’s star ratings and other quality of care scores.
This page includes contact information for the Arkansas, Louisiana, and Oklahoma WIPA programs.
ESRD Network 13 | 4200 Perimeter Center Drive, Suite 102 | Oklahoma City, OK 73112 | 405.942.6000