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For Patients and Families

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Network 15 provides services to help ensure transplant and end stage renal disease (ESRD) patients are receiving the best care possible.  We do this by:

  • Working with dialysis and transplant facilities to improve the quality of care
  • Investigating patient grievances
  • Providing patient and provider education
  • And more!

We encourage you and your family to learn more about ESRD and ways that you can become involved in your treatment by looking at topics on this website. Equally important, we urge you to talk to your care team (physicians, nurses, social workers, dietitians, and technicians) and get involved in the decision-making process so that you will find your own best approach to treatment.

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The National Coordinating Center (NCC) created a video of a member of the Network's Patient Advisory Council (PAC) that features their ESRD journey, where they garner strength from, their work with the Network, and their hope for other patients.

View Roy's story

New Resource: Getting Back to Me: A Goal-Setting Journey (PDF)

Do you have a goal you would like to achieve? The Getting Back to Me: A Goal-Setting Journey is a workbook that can assist you with identifying personal goals and setting a plan to achieve them. This resource was developed by kidney patients and family members and designed to help restore a sense of dignity and increase self-esteem through goal-setting.

Advanced Care Planning

Caring Connections

Caring Info is a program of the National Hospice and Palliative Care Organization that provides free resources to help people make decisions about end of life care and services.



Coalition for Supportive Care of Kidney Patients

The Coalition for Supportive Care of Kidney Patients (CSCKP) brings together like-minded people who care deeply about the quality of compassionate, supportive care for kidney patients. The coalition offers professionals from many disciplines and laypersons who are working for true patient-centered care that values quality of life.



Concerns About Your Care

Find and Compare Facilities

Dialysis Facility Compare

Dialysis Facility Compare (DFC) is a service of the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services (DHHS). DFC helps you find detailed information about Medicare-certified facilities, compare the services and the quality of care that facilities provide, get other resources for patients and family members who want to learn more about chronic kidney disease and dialysis, and get links to learn more about how Medicare covers people with ESRD.



Dialysis Facility Compare - The National Forum of ESRD Networks

This site helps you find and compare Medicare-certified dialysis facilities. You can see how each facility compares to others based on star ratings, services offered, and quality of care. This tool is especially helpful if you need to find a temporary facility.



Infection Prevention

Caring for Your Dialysis Catheter

This tri-fold brochure about caring for a central venous catheter (CVC) and how to recognize and trouble shoot problems, is an excellent resource for patients with CVCs. 



Hand Hygiene Saves Lives Brochure

This brochure provides information about how hand hygiene can saves lives.



Medicare Coverage

Centers for Medicare & Medicaid Services (CMS)

The Official U.S. Government website for Medicare.



Medicare Coverage of Kidney Dialysis and Kidney Transplant Services

This official booklet contains the basics of Medicare, how Medicare helps pay for kidney dialysis and kidney transplants and where to get help.



Nutrition and Diet

Anemia

Anemia is very common in kidney patients. If left untreated, it can lead to loss of energy, headaches, trouble sleeping, dizziness, shortness of breath, lack of appetite, and a rapid heart rate. This fact sheet provides valuable information for dialysis patients.



Fluid Management

Kidneys are instrumental in removing excess water in the body, so the right balance of liquids is important to your kidney diet.  Read these resources for more information.



Patient and Family Engagement

Dialysis Patient Speaks About Preventing Infection

Created by Liza Walworth for the ESRD Network of New England, Inc. at Dialysis Clinic, Inc.'s facility at Tufts Medical Center. Used with permission.



Patient Plan of Care Brochure_Spanish Language

This Spanish language resource was created by patients for patients, with the goals of:
• Getting more patients engaged in their dialysis Plans of Care (POC).
• Encouraging dialysis facilities to hold POC meetings with patients.
• Inspiring patients to attend their POC meetings.



Patient Newsletters

August 2020 Patient Newsletter

The August 2020 Patient Newsletter highlights emergency preparedness during the Coronavirus 2019 (COVID-19) pandemic, transplant options, the importance of vaccinations, and a patient story on the importance of a supportive network of healthcare professional, friends, and family.



August 2020 Patient Newsletter Spanish

The August 2020 Patient Newsletter Spanish highlights emergency preparedness during the Coronavirus 2019 (COVID-19) pandemic, transplant options, the importance of vaccinations, and a patient story on the importance of a supportive network of healthcare professional, friends, and family.



Patient Rights and Responsibilities

Can You Ever Be Discharged from Dialysis?

Can You Ever Be Discharged from Dialysis? is an important handout that explains, simply but comprehensively, the four reasons a patient can be involuntarily discharged from his/her dialysis facility. 



¿Puede usted ser dado de alta de diálisis? ¡Sí tu puedes! Caring About Your Care in Spanish

¿Puede usted ser dado de alta de diálisis? es un folleto importante que explica, de forma sencilla pero exhaustiva, las cuatro razones que un paciente puede ser dado de alta involuntariamente de su centro de diálisis.



Tools for Dealing with Depression

The National Forum of ESRD Networks Dialysis Depression Toolkit

The Forum of End State Renal Disease (ESRD) Network’s Kidney Patient Advisory Council (KPAC) has developed the Dialysis Depression Toolkit to help patients who feel they may be experiencing depression. This toolkit was designed BY patients and FOR patients and with contributions by professional collaborators. the Toolkit helps to explain depression and provides information on how to find help.



Treatment Information

Choosing a Treatment That's Right for You

This booklet provides information on how to choose the best treatment option for YOU.



Choosing a Treatment That's Right for You - Spanish

The Spanish language version of this booklet provides information on how to choose the best treatment option for YOU.



Vaccinations

No More Excuses - You Need the Flu Shot

This is a flyer that provides reasons you need to get vaccinated.



To Vaccinate or Not to Vaccinate?

Did you know that dialysis patients are more likely to develop infections than people
with healthy kidneys? If you have indicated that you would rather not receive the recommended vaccinations for people with kidney disease, this short checklist asks you to indicate why,



Vascular Access

Benefits of Having a Permanent Access

This document outlines the many benefits patients have shared for having a permanent dialysis access.



Vascular Access

If you are on hemodialysis, a vascular access is the site from which blood can be safely removed and returned to your body. There are both temporary and permanent vascular accesses.



Vocational Rehabilitation

A Practical Guide for People with Disabilities Who Want to Go to College

This guide helps people with disabilities plan for attending  college.



Employment: A Kidney Patient's Guide to Working and Paying for Treatment

This is booklet that introduces life options for patients with kidney disease.



Volunteer Opportunities

Patient Advisory Council SME Participation Agreement Form

Patients who are interested in volunteering with the Network as a PAC SME should complete this form and return it to the Network.



Patient Advisory Council SME Roles and Responsibilities

If you are thinking about becoming a patient or care partner subject matter expert (SME) on the Patient Advisory Council (PAC), this document provides an outline of what your roles and responsibilities would be.



HSAG

ESRD Network 15 | 3025 South Parker Road, Suite 820 | Aurora, CO 80014 | 303.831.8818