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For Patients and Families

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Network 15 provides services to help ensure transplant and end stage renal disease (ESRD) patients are receiving the best care possible.  We do this by:

  • Working with dialysis and transplant facilities to improve the quality of care
  • Investigating patient grievances
  • Providing patient and provider education
  • And more!

We encourage you and your family to learn more about ESRD and ways that you can become involved in your treatment by looking at topics on this website. Equally important, we urge you to talk to your care team (physicians, nurses, social workers, dietitians, and technicians) and get involved in the decision-making process so that you will find your own best approach to treatment.

Advanced Care Planning

Planning Today for Tomorrow's Healthcare: A Guide for People with Chronic Kidney Disease

This brochure will provide details on how to have control over your healthcare in the event that you cannot speak for yourself.



The Conversation Project

This website is dedicated to helping people talk about their wishes for end of life care.



Grievance Process

Grievance Brochure

Use this brochure as a guide on how to proceed if you have a concern or grievance.



Grievance Brochure Spanish Version

Use this Spanish language brochure as a guide on how to proceed if you have a concern or grievance.



Volunteer Opportunities

Volunteer with the Network

The Network is looking for patients to help improve the quality of care for ESRD patients. This document provides more information about how to volunteer.



Patient Advisory Committee SME Participation Agreement Form

Patients who are interested in volunteering with the Network as a PAC SME should complete this form and return it to the Network.



Find and Compare Facilities

Dialysis Facility Compare

Dialysis Facility Compare (DFC) is a service of the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services (DHHS). DFC helps you find detailed information about Medicare-certified facilities, compare the services and the quality of care that facilities provide, get other resources for patients and family members who want to learn more about chronic kidney disease and dialysis, and get links to learn more about how Medicare covers people with ESRD.



DialysisCenters.org

This website helps people who need dialysis find facilities near where they live or work.



Patient Rights and Responsibilities

Patient Responsibilities Poster - English

Do you know your responsibilities as a patient? This poster reviews important patient responsibilities for ESRD patients to know and understand.



Patient Responsibilities Poster - Spanish

Do you know your responsibilities as a patient? This Spanish language poster reviews important patient responsibilities for ESRD patients to know and understand.



Medicare Coverage

Multilanguage Publications from Medicare

This official U.S. government website provides information in multiple languages.



How Medicare Prescription Drug Coverage Works with a Medicare Advantage Plan or Medicare Cost Plan

Medicare offers prescription drug coverage for everyone with Medicare. The coverage is called "Part D." To get Medicare drug coverage, you must join a Medicare Prescription Drug Plan.



Patient and Family Engagement

What is Patient Engagement? (Video)

Created by the Center for Advancing Health (CFAH).  Used with permission.



Patient Plan of Care Campaign Brochure

This resource was created by patients for patients, with the goals of:
• Getting more patients engaged in their dialysis Plans of Care (POC).
• Encouraging dialysis facilities to hold POC meetings with patients.
• Inspiring patients to attend their POC meetings.



Treatment Information

Fixing Paco: Kidney Transplant as a Treatment Option, Living Donation, and the Importance of Proactive Patient Involvement

Fixing Paco is a website dedicated to educating the public about the leading causes of kidney disease, how to prevent it, kidney transplant as a treatment option, the need for living organ donors, and the importance of proactive patient involvement in care.

There are two components to the website:

  • A web series that tells the "story of family, big decisions and second chances."
    • Episode 1: “El Mil Usos” (14:03)
      Paco Fuentes, a busy handyman, husband and father suffering from end-stage renal disease and on dialysis, is ready to learn about what’s involved in kidney transplantation.
    • Episode 2:“Dreamy Dialysis Technician” (9:15)
      To find out if transplantation is an option, Paco and his family visit his doctor at the dialysis center; and later meet Claudia, a transplant coordinator who explains the role of the transplant team and the reality of what Paco can expect.
    • Episode 3: “Do As I Say, Not As Tia Julia Does” (10:13)
      With his energy low and barely able to work, Paco and his family meet with a transplant surgeon to begin the medical evaluation and transplant process, while Tia Julia continues to be a bad example, by not being compliant and proactive with her health.
    • Episode 4“I'm Broken, So You Fix Me” (7:40)
      Paco begins the medical evaluation process to determine his eligibility for a kidney transplant; he learns how long the wait can be for a deceased donor kidney; and is reminded of how important it is to stay proactive with his health while he waits.
    • Episode 5: “Dad, I Want To Give You My Kidney” (9:05)
      Paco and his family are elated that he’s eligible for a transplant, but the reality of how long Paco might have to wait for a deceased donor kidney makes his family decide to explore living donation in hope of “fixing” him more quickly.
    • Episode 6: “How Daisy Got Her Backbone Back” (8:04)
      Paco’s family begins their own medical evaluation process to find out if any of them are a suitable match and can donate a kidney to him, while Daisy has had it with Tia Julia’s lack of compliance.
    • Episode 7: “Check!” (8:32)
      Margie works with Paco to learn about transplantation and dialysis, while Paco’s family and friends try to help him through his ups and downs with their support and encouragement for staying healthy until his transplant.
    • Episode 8: “I'm Ready To Fix You” (7:29)
      As the big day arrives for Daniel’s living donation to Paco, everyone in the family is nervous but excited, and Paco realizes the big responsibility he’ll have to take on as transplant recipient.
    • Episode 9: “Now I Need Therapy, And You're Coming With Me” (12:14)
      Paco’s transplant was a great success, but the depression he’s feeling from the side-effects of his medication leads Carmencita to give Paco a push to reach out for help, and he finds an unexpected ally in Tia Julia, who’s ready to make a change.



Why Am I Cold? Brochure

This tri-fold brochure explains the reasons why a dialysis patient might feel cold and ways to keep warm while on dialysis.



Nutrition and Diet

Fluid Management

Kidneys are instrumental in removing excess water in the body, so the right balance of liquids is important to your kidney diet.  Read these resources for more information.



Anemia

Anemia is very common in kidney patients. If left untreated, it can lead to loss of energy, headaches, trouble sleeping, dizziness, shortness of breath, lack of appetite, and a rapid heart rate. This fact sheet provides valuable information for dialysis patients.



Vaccinations

No More Excuses - You Need the Flu Shot

This is a flyer that provides reasons you need to get vaccinated.



Vaccines for People on Dialysis

This flyer provides recommended immunizations for people on dialysis.



Vocational Rehabilitation

Ticket to Work Program

Ticket to Work is a free and voluntary program that can help Social Security beneficiaries go to work, get a good job that may lead to a career, and become financially independent, all while they keep their Medicare or Medicaid. Individuals who receive Social Security benefits because of a disability and are age 18 through 64 probably already qualify for the program.



A Practical Guide for People with Disabilities Who Want to Go to College

This guide helps people with disabilities plan for attending  college.



Vascular Access

What You Need to Know to Keep Your Fistula Healthy - Spanish

This Spanish language guide provides information about what kidney patients need to know to stay healthy with a fistula.



What You Need To Know To Keep Your Fistula Healthy

This guide provides information about what kidney patients need to know to stay healthy with a fistula.



Infection Prevention

Sepsis Zone Tool: My Plan to Identify Infection and/or Sepsis

Tthis one page tool will help you determine if you're fine, may have an infection and need to call your provider about possible infection, or are in trouble and need to call 9-1-1 in the event of sepsis.



Hand Hygiene Saves Lives Brochure

This brochure provides information about how hand hygiene can saves lives.



Patient Newsletters

August 2018 Patient Newsletter

This August newsletter highlights immunizations, the ESRD Quality Improvement Activity Learning and Action Networks, the Peer Mentor Program, kidney transplant, and more.



June 2018 Patient Newsletter

This June newsletter highlights the importance of vocational rehabilitation, how to really prepare for an emergency, the benefits of nocturnal hemodialysis, and more.



Tools for Dealing with Depression

The National Forum of ESRD Networks Dialysis Depression Toolkit

The Forum of End State Renal Disease (ESRD) Network’s Kidney Patient Advisory Council (KPAC) has developed the Dialysis Depression Toolkit to help patients who feel they may be experiencing depression. This toolkit was designed BY patients and FOR patients and with contributions by professional collaborators. the Toolkit helps to explain depression and provides information on how to find help.



HSAG

ESRD Network 15 | 3025 South Parker Road, Suite 820 | Aurora, CO 80014 | 303.831.8818