Network 17 provides services to help ensure transplant and end stage renal disease (ESRD) patients are receiving the best care possible. We do this by:
- Working with dialysis and transplant facilities to improve the quality of care
- Investigating patient grievances
- Providing patient and provider education
- And more!
We encourage you and your family to learn more about ESRD and ways that you can become involved in your treatment by looking at topics on this website. Equally important, we urge you to talk to your care team (physicians, nurses, social workers, dietitians, and technicians) and get involved in the decision-making process so that you will find your own best approach to treatment.
The National Coordinating Center (NCC) created videos of two members of the Network's Patient Advisory Council (PAC) that features their ESRD journey, where they garner strength from, their work with the Network, and their hope for other patients.
New Resource: Getting Back to Me: A Goal-Setting Journey (PDF)
Do you have a goal you would like to achieve? The Getting Back to Me: A Goal-Setting Journey is a workbook that can assist you with identifying personal goals and setting a plan to achieve them. This resource was developed by kidney patients and family members and designed to help restore a sense of dignity and increase self-esteem through goal-setting.
ESRD and Health Education
This booklet gives tips on treating kidney failure, making treatments better, and living a healthier lifestyle.
This brochure addresses the reasons patients may feel cold during their treatment and some ways they can deal with that.
The ESRD National Coordinating Center (NCC) website provides information about vascular access management through a program called Lifeline for a Lifetime.
The Life Options website offers free print materials available, including booklets, newsletters, and fact sheets. This site contains vascular access education in multiple languages.
Nutrition and Diet
Kidneys are instrumental in removing excess water in the body, so when your kidneys don’t work, it is harder to keep the right fluid balance. The right balance is important, because if you gain too much fluid, you may have: Swelling in your face, hands, and feet Headaches and low...
The Little Book About Kidneys by Victoria Hanson and illustrated by Jenny Tulip, will help you talk to young children about your kidneys and the treatments you may experience. It is intended to support you in explaining your kidney failure to children.
This website provides information and resources about how to stop smoking.
If you have a concern about the care being provided to you or family member in a dialysis clinic, you may call the Network at any time. However, you are encouraged to speak to the clinic manager, charge nurse, or social worker first. This resource will provide you with more information about the Network grievance process, including how to file a grievance.
This flyer provides recommended immunizations for people on dialysis.
Fact or fiction? This handout, available in English and Spanish, dispels some of the myths and highlights the facts about the Pneumonia and Hepatitis B vaccinations.
Prescription Drug Coverage
Each outreach event will also provide many other services that beneficiaries can take advantage of and have included: vaccinations, blood pressure testing, diabetes screening, cholesterol testing, bone density testing, and much more.
Learn about how to get Medicare Part D drug coverage, what drug plans cover, costs for Medicare drug coverage, how Medicare Part D works with other insurance, and the enrollment dates.
Going Back to Work or School
Social Security pays disability benefits to you and certain members of your family if you have worked long enough and have a medical condition that has prevented you from working, or is expected to prevent you from working for at least 12 months, or end in death.
Social Security pays disability benefits to you and certain members of your family if you have worked long enough and have a medical condition that has prevented you from working or is expected to prevent you from working for at least 12 months or end in in death.
This one page document for patients provides some ideas to help promote comfort and ease patients' pain that can be tried before moving to medication.
Fixing Paco is a website dedicated to educating the public about the leading causes of kidney disease, how to prevent it, kidney transplant as a treatment option, the need for living organ donors, and the importance of proactive patient involvement in care.
There are two components to the website:
- A public service announcement (PSA) campaign that carries a strong call to action.
- Get the Facts (0:30)
- Get the facts! Get Checked! Get Help! (0.60)
- A web series that tells the "story of family, big decisions and second chances."
This document provides a list of and links to online and telephonic resources that specialize in kidney disease. Many offer education, as well as the opportunity to connect with other end stage renal disease (ESRD) patients, family members, and/or caregivers through discussion forums and subscription-based email lists.
The American Association of Kidney Patients continually develops high quality, professionally written, edited and reviewed educational pieces covering every level of kidney disease.
End of Life Care
This brochure will provide details on how to have control over your healthcare in the event that you cannot speak for yourself.
The Coalition for Supportive Care of Kidney Patients brings together like-minded multi-disciplinary clinical professionals and lay people who care deeply about the quality of compassionate, supportive care for kidney patients. The website includes education, helpful links, and resources.
The October 2020 Patient Newsletter highlights information for Living Well with Diabetes, completing the In-Center Hemodialysis Consumer Assessment of Healthcare Providers and Systems (ICH-CAHPS) survey, managing pain, and Medicare Part D open enrollment.
The October 2020 Patient Newsletter Spanish highlights information for Living Well with Diabetes, completing the In-Center Hemodialysis Consumer Assessment of Healthcare Providers and Systems (ICH-CAHPS) survey, managing pain, and Medicare Part D open enrollment.
Patient Rights and Responsibilities
Do you know your responsibilities as a patient? This poster reviews important patient responsibilities for ESRD patients to know and understand.
Do you know your responsibilities as a patient? This Spanish language poster reviews important patient responsibilities for ESRD patients to know and understand.
ESRD Network 17 | 533 Airport Blvd., Suite 400, Burlingame, CA 94010 | 415.897.2400