Network 7 provides services to help ensure transplant and end stage renal disease (ESRD) patients are receiving the best care possible. We do this by:
- Working with dialysis and transplant facilities to improve the quality of care
- Investigating patient grievances
- Providing patient and provider education
- And more!
We encourage you and your family to learn more about ESRD and ways that you can become involved in your treatment by looking at topics on this website. Equally important, we urge you to talk to your care team (physicians, nurses, social workers, dietitians, and technicians) and get involved in the decision-making process so that you will find your own best approach to treatment.
Plan of Care (POC) Meeting
This resource was created by patients for patients, with the goals of:
- Getting more patients engaged in their dialysis Plans of Care (POC).
- Encouraging dialysis facilities to hold POC meetings with patients.
- Inspiring patients to attend their POC meetings.
This Spanish language resource was created by patients for patients, with the goals of:
• Getting more patients engaged in their dialysis Plans of Care (POC).
• Encouraging dialysis facilities to hold POC meetings with patients.
• Inspiring patients to attend their POC meetings.
Patient Education & Engagement Representative (PEER) Program
This brochure provides information about becoming a PEER volunteer for your dialysis facility.
This Spanish version brochure provides information about becoming a PEER volunteer for your dialysis facility.
Patient Rights and Responsibilities
This Patient Grievance Toolkit (available in English and Spanish) was created by the Forum of ESRD Networks Kidney Patient Advisory Council (KPAC). It was developed BY patients, FOR patients, and offers guidance and tools to assist in the grievance process.
Do you know your rights as a patient? This poster reviews important patient rights for ESRD patients to know and understand.
Patient Needs Assessment
The Home Hemodialysis Needs Assessment is designed to gain an understanding of dialysis patients’ educational needs, level of activity in the facility Plan of Care process, and knowledge of treatment options.
The In-Center Hemodialysis Needs Assessment is designed to gain an understanding of dialysis patients’ educational needs, level of activity in the facility Plan of Care process, and knowledge of treatment options.
ESRD and Health Education
The Little Book About Kidneys by Victoria Hanson and illustrated by Jenny Tulip, will help you talk to young children about your kidneys and the treatments you may experience. It is intended to support you in explaining your kidney failure to children.
These FAQs should shed light on the Five-Star Rating System. We hope this transparency empowers patients to make the best decisions for their health.
This document tells you about how you can help other patients by sharing your experiences with getting, using, and maintaining your permanent access.
This checklist is designed to help you to stay on the road to the placement and use of a permanent access.
Prescription Drug Coverage
Learn about how to get Medicare Part D drug coverage, what drug plans cover, costs for Medicare drug coverage, how Medicare Part D works with other insurance, and the enrollment dates.
The American Association of Kidney Patients is recognized as the leader for patient-centered education – continually developing high quality, professionally written, edited and reviewed educational pieces covering every level of kidney disease.
The American Kidney Fund is dedicated to ensuring that every kidney patient has access to health care, and that every person at risk for kidney disease is empowered to prevent it. The site offers patient programs, kidney disease education, and professional education.
End of Life Care
The Coalition for Supportive Care of Kidney Patients brings together like-minded people who care deeply about the quality of compassionate and supportive care for kidney patients.
Every competent adult has the right to make decisions concerning his or her own health, including the right to choose or refuse medical treatment. This website contains health care advance directives education, information, and forms.
Scheduling issues are a common source of frustration for dialysis patients and staff.This document addresses what you can do to help keep your dialysis schedule running as on time as possible.
Fixing Paco: Kidney Transplant as a Treatment Option, Living Donation, and the Importance of Proactive Patient Involvement
Fixing Paco is a website dedicated to educating the public about the leading causes of kidney disease, how to prevent it, kidney transplant as a treatment option, the need for living organ donors, and the importance of proactive patient involvement in care.
There are two components to the website:
- A public service announcement (PSA) campaign that carries a strong call to action.
- Get the Facts (0:30)
- Get the facts! Get Checked! Get Help! (0.60)
- A web series that tells the "story of family, big decisions and second chances."
This flyer provides recommended immunizations for people on dialysis.
Patients who undergo dialysis treatment have an increased risk of infection. They are at a high risk for infection because the process of hemodialysis requires frequent use of dialysis catheters or the insertion of needles to access the bloodstream. Additionally, hemodialysis patients commonly have...
Going Back to Work or School
The FAAST Device Loan Program is a way for people with disabilities of all ages to try out different assistive devices to best determine those most helpful for them. The Program provides hands on training and access to personal computers and other items.
Social Security pays disability benefits to you and certain members of your family if you have worked long enough and have a medical condition that has prevented you from working, or is expected to prevent you from working for at least 12 months, or end in death.
In this April 2019 Patient Newsletter we highlight Hepatitis Awareness Month, tIn-Center Hemodialysis Consumer Assessment of Healthcare Providers and Systems (ICH-CAHPS) survey, how to preserve and protect your vascular access site, and more.
This February 2019 edition of the Patient Newsletter highlights information about the Network, your "Welcome to Medicare" preventive visit, the ESRD Quality Incentive Program (QIP), and more.