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Patient Rights and Assistance


California Governor Signs Landmark Right-to-Die Law

National Public Radio reports on California’s recently adopted law, allowing terminally ill patients to obtain lethal drugs to end their lives by choice.

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Drug Formulary Exclusion Lists Reduce Patient Access to Treatment

As drug formulary drug exclusion lists grow, patient access to medications and treatments is reduced. The article notes that drug formulary exclusion lists have grown by almost 160 percent from 2014 to the present. Those most affected by such changes include low-income and minority patients. Read...

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HHS Clarifies Patient Rights to Medical Records

The Department of Health and Human Services Office for Civil Rights explains patients’ rights to access their medical records under the Health Insurance Portability and Accountability Act’s (HIPAA’s) Privacy Rule.

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HHS OCR Anticipates Additional Guidance on Patients’ Rights to Access Health Data

At the 25th Annual HIPAA Summit, Jocelyn Samuels, the Office of Civil Rights (OCR) Director, encouraged covered entities uncertain about access rights to reach out to the OCR for clarification. Samuels indicated that the OCR expects this to be an “iterative” process, where the OCR provides...

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How the Elderly Lose Their Rights

Author Rachel Aviv recounts how adult guardians can sell the assets and dictate the lives of older Americans without their consent. It is a national problem that the author illustrates through actual life stories of unsuspecting seniors and their families. From brief court appearances, weak...

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How to Get Your Health Record

The Office of the National Coodinator provides a webpage guide, explaining to patients on how to access and use their medical record.

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It Can Cost Hundreds of Dollars to Access Your Medical Records. Are You Paying Too Much?

In January, the American Medical Association (AMA) published an opinion piece on access to medical records varies from state-to-state given the pricing for document reproduction. While patient portals help to bridge the gap, they are not a complete solution as they do not typically include the...

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Patient Privacy Rights Education Requires Provider Input

The author observes that exposure to HIPAA waivers are often the only introduction to privacy a patient receives regarding their electronic health record (EHR). That does not fully cover how their data will be collected, stored, used, and shared. Without a full understanding, patients might feel...

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Patient's Bill of Rights

The Center for Consumer Information & Insurance Oversight as part of the Centers for Medicare & Medicaid Services' Website provides details and facts sheets on the Patient's Bill of Rights—a set of rights which commenced on September 23, 2010.

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Record Copying Fees, Admin Hurdles Harm Patient Data Access

Access to patient data still faces numerous barriers, including administrative challenges, pricey medical record copying fees, and misconceptions regarding the Health Insurance & Portability Accountability Act (HIPAA). Read more at the Patient EngagementHIT article.

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Transgender Patients Protected Under Healthcare Rules

The Department of Health and Human Services (HHS) has announced that doctors and hospitals that receive federal funding face sanctions if they discriminate against people based on their gender or gender identity.

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