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Transplant Change Package

This Transplant Change Package was created by collecting best practices from highly effective outpatient dialysis facilities and transplant centers. It identifies proven roads to success (Primary Drivers) and actionable resources (Secondary Drivers) to support small changes or ideas to help dialysis facilities reach transplant referral and wait list goals. The Network encourages dialysis facilities to review the Change Package with the IDT during monthly Quality Assessment and Performance Improvement (QAPI) meetings to design a plan for the facility.

Network 17 Transplant Centers (America Samoa, Guam, Hawaii, Mariana Islands, and Northern California)

Network 7 Florida Transplant Centers:

Transplant Medication Resources:

California Specific Resources

Patients can apply for Covered California or Medi-Cal by going to: https://c4yourself.com/c4yourself/index.jsp

Patients can apply for MRMIP (Major Risk Medical Insurance Program) through the State of California by going to: https://www.dhcs.ca.gov/services/Pages/MajorRiskMedicalInsuranceProgram.aspx. AKF may be able to assist with the premium costs.

Florida-Specific Resources:

The NKF of Florida’s Hawthorne Patient Assistance Fund will provide short-term financial assistance to qualified kidney transplant recipients to meet the cost of their kidney transplant related medications (immunosuppressant and prophylaxis drugs), while they seek out other longer-term solutions.

Approved patient applicants are eligible to receive assistance of up to $1,000 per month, with a lifetime maximum of $3,000, paid directly to their pharmacy of choice. 

Partnering Along the Road to Transplant (English/Spanish): Use this handout to educate on ways to improve communication between patients and their providers and ease the transplant process for patients.

Ascent to Transplant videos for patients and healthcare providers:

Understanding the Kidney Allocation System: Wednesday February 19, 2020

Arizona Mayo Clinic Transplant physicians, Dr. Khamash and Dr. Jadlowiec, share a wealth of information on the essentials to understanding the Kidney Allocation System. This presentation may be viewed at the link below:

Considering a Transplant? Let's Get Started! (PDF)

This tri-fold brochure can easily fit into a pocket and can be used to track progress and keep details organized as a patient prepares for transplant evaluation.

More Resources

    • Episode 2:“Dreamy Dialysis Technician” (9:15)
      To find out if transplantation is an option, Paco and his family visit his doctor at the dialysis center; and later meet Claudia, a transplant coordinator who explains the role of the transplant team and the reality of what Paco can expect.
    • Episode 3: “Do As I Say, Not As Tia Julia Does” (10:13)
      With his energy low and barely able to work, Paco and his family meet with a transplant surgeon to begin the medical evaluation and transplant process, while Tia Julia continues to be a bad example, by not being compliant and proactive with her health.
    • Episode 4“I'm Broken, So You Fix Me” (7:40)
      Paco begins the medical evaluation process to determine his eligibility for a kidney transplant; he learns how long the wait can be for a deceased donor kidney; and is reminded of how important it is to stay proactive with his health while he waits.
    • Episode 5: “Dad, I Want To Give You My Kidney” (9:05)
      Paco and his family are elated that he’s eligible for a transplant, but the reality of how long Paco might have to wait for a deceased donor kidney makes his family decide to explore living donation in hope of “fixing” him more quickly.
    • Episode 6: “How Daisy Got Her Backbone Back” (8:04)
      Paco’s family begins their own medical evaluation process to find out if any of them are a suitable match and can donate a kidney to him, while Daisy has had it with Tia Julia’s lack of compliance.
    • Episode 7: “Check!” (8:32)
      Margie works with Paco to learn about transplantation and dialysis, while Paco’s family and friends try to help him through his ups and downs with their support and encouragement for staying healthy until his transplant.
    • Episode 8: “I'm Ready To Fix You” (7:29)
      As the big day arrives for Daniel’s living donation to Paco, everyone in the family is nervous but excited, and Paco realizes the big responsibility he’ll have to take on as transplant recipient.
    • Episode 9: “Now I Need Therapy, And You're Coming With Me” (12:14)
      Paco’s transplant was a great success, but the depression he’s feeling from the side-effects of his medication leads Carmencita to give Paco a push to reach out for help, and he finds an unexpected ally in Tia Julia, who’s ready to make a change.

Understanding the Kidney Allocation System: Wednesday February 19, 2020

Arizona Mayo Clinic Transplant physicians, Dr. Khamash and Dr. Jadlowiec, share a wealth of information on the essentials to understanding the Kidney Allocation System. This presentation may be viewed at the click below:

  • Network 7 2019/2020 Transplant Referral Guide
    The Transplant Referral Guide is a tool to help guide dialysis patients, their family members and care partners to the transplant centers that could most likely meet their needs. It provides location and contact information, as well as easy-to-compare eligibility criteria for the 10 transplant centers in the Network 7 service area.
  • PDSA Cycle Intervention
    Use this Plan-Do-Study-Act (PDSA) tool to guide you in your transplant QIA rapid-cycle improvement process.
  • 5 Step Transplant Tracker
    Use the 5 Steps to Transplant Tracker (XLSX) for tracking patients through the 5 step waitlist process, documenting contacts with transplant centers, monitoring active/inactive status and identifying barriers. 

Kidney Transplant Referral and Criteria Overview
Tuesday, February 11, 2020 |  Play Recording (1 hr., 11 min.)
This presentation addresses kidney referral and transplant criteria, multi-center listing, and individual transplant contact information. Presented by Banner University Medicine in Tucson, Banner University Medicine in Phoenix, Dignity Health St. Joseph’s Hospital and Medical Center, and Mayo Clinic Kidney Transplant. 

Colorado: Recording Unavailable.

Nevada

Kidney Transplant Referral and Criteria Overview
Tuesday, February 4, 2020 | Play Recording (59 min.)
This presentation addresses kidney referral and transplant criteria, multi-center listing, and individual transplant contact information. Presented by UMC Center for Transplantation.  

New Mexico

Kidney Transplant Referral and Criteria Overview
Wednesday, February 5, 2020 | Play Recording (57 min.)
This presentation addresses kidney referral and transplant criteria, multi-center listing, and individual transplant contact information. Presented by Presbyterian Hospital Transplant and University of New Mexico Hospital.  

Utah

Kidney Transplant Referral and Criteria Overview
Thursday, February 6, 2020 | Play Recording (52 min.)
This presentation addresses kidney referral and transplant criteria, multi-center listing, and individual transplant contact information. Presented by University of Utah Health and Intermountain Healthcare Transplant Services.